Sunday, April 25, 2010

Leukemia and Lymphoma newsletter

Although my logo copy still says 1949-2009, rest assured that the Leukemia and Lymphoma Society has a current logo for 2010 and has the most current information available for parents.

Log onto their website at and read about new studies, current treatments, and awesome rates for remission and cures for children with blood cancers. Look for the free web tele-classes and phone conferences offered and sign up for one today.

I am registered for the phone conference on May 4th for the newest updates on the treatments of childhood leukemia. I will post information as I find it regarding this class.

Check out the site often. There is a vast amount of information for parents there. Here are just a few tips I found on how to help your child cope.

1. Give them age appropriate information as they need it.

2. Let them digest the information and ask questions at their own pace.

3. Share with them that the caregivers that are treating them may also have to cause them pain, but that they will also treat the pain. It is all to make them better and tests and treatments should be explained in a way that the child can understand.

4. Take a deep breath, and take one day at a time. Spend as much time as you can with your child, but explain to the child if there are times that you must be away to tend to business.

Check back often here and at for more tips on helping your child cope.

Sunday, April 11, 2010

Working on a fresh look....... coming soon.

Spring is here and it is time for a fresh look to my blog for parents and kids dealing with a serious illness so I will be working on getting new and improved information to share with you.

  • More importantly to me, is the children's book that I am working on for children who are dealing with cancer. You have met my character here, Lilly Isabella Lane, but she needs her story finished. So while I am working on freshening up this blog, I will also be getting her story polished and off to a publisher, so for a time, the posts here may be less frequent.

I am passionate about providing stories for kids about characters doing and feeling the same things that real kids do and feel. So I am committed to getting her story out there for those readers who need to get to know her.

While I know that writing about uncomfortable subjects like kids dealing with cancer may not be popular for everyone, as a nurse, I know it needs to get done. Look for more about Lilly here. Comments and suggestions are always welcome here or by email at if you have something to add to the topic. Parents who have been dealing with a sick child may have important information to share, and I would be glad to include it with the book. Email if you have suggestions.

In the mean time, Happy Spring and Health and Blessings to all.

PS: I have a prayer book for adults dealing with cancer at the publisher now and will include links as soon as it is printed. I also am working on a children's version of prayers for kids with cancer. Keep checking.