I have another resource for those of you dealing with grief or have the burden of needing Hospice care for a loved one.
This blog is sponsored by The Hospice Foundation of America and has several links for good solid information for those in need.
I checked out several of the links, especially the one for children. It offers many articles regarding pediatric needs. It is worth a look.
Anytime you are dealing with a situation this devastating, it is always a blessing to find resources from reliable professionals and this site has several contributors who are qualified. The blog can be found at http://hfahospice.blogspot.com
You may also check out the website which is full of excellent information for families facing these dilemmas. http://www.hospicefoundation.org